The code block below illustrates how one might use # and // as comments in your logic and calculations.

This value you provided is not a number. Please try again.

This value you provided is not an integer. Please try again.

The value entered is not a valid Vanderbilt Medical Record Number (i.e. 4- to 9-digit number, excluding leading zeros). Please try again.

The value you provided must be within the suggested range

The value you provided is outside the suggested range

This value is admissible, but you may wish to double check it.

The value entered must be a time value in the following format HH:MM within the range 00:00-23:59 (e.g., 04:32 or 23:19).

This field must be a 5 or 9 digit U.S. ZIP Code (like 94043). Please re-enter it now.

This field must be a 10 digit U.S. phone number (like 415 555 1212). Please re-enter it now.

This field must be a valid email address (like joe@user.com). Please re-enter it now.

The value you provided could not be validated because it does not follow the expected format. Please try again.

Required format:

No4StQg2rAtsZfUmkuvghofbIZMM6c59Fmbtg4qmo97cgc8rkTL2UetGqGmsJutxdNdsDDZIMYrN2IZGu6H2ezpPyp9EQFhxVqC26Ts8a28mjqnZc

ION-PROM: Development of a patient reported outcome measure (PROM) for inherited optic neuropathies (ION) questionnaire

ION-PROM study: Development of a patient reported outcome measure (PROM) for inherited optic neuropathies (ION)

Professor Patrick Yu Wai Man from the University of Cambridge and Moorfields Eye Hospital (London) is leading a study to develop a new questionnaire for individuals affected by DOA and LHON to report their quality of life and experiences living with their condition. The questionnaire will be a useful tool in future clinical trials of both conditions and as part of regular clinical assessments to understand the impact of DOA and LHON.

Following on from conducting interviews (as part of this study) to discuss the experiences of living with DOA or LHON, we are looking for individuals to help test the questionnaire and make sure it is relevant to the LHON and DOA communities. Individuals with a genetic diagnosis of DOA or LHON, aged 16 years and older, and with symptoms of their condition are invited to take part.

To help test this questionnaire, please complete the survey below - we expect this to take approximately 30 minutes.

This questionnaire includes questions about the impact of your condition on your day-to-day activities and how you feel physically, emotionally, and mentally. Some of the questions might make you feel uncomfortable, anxious, or sad - you do not have to answer any questions that you are not comfortable with completing.

You can contact us at add-tr.mitoteam@nhs.net if you have any questions about the study or the questionnaire.

Thank you!

You have selected an option that triggers this survey to end right now.

To save your responses and end the survey, click the 'End Survey' button below. If you have selected the wrong option by accident and/or wish to return to the survey, click the 'Return and Edit Response' button.